I bring lived experience into research, care and conversation. I partner with healthcare, child-health and rare disease organizations on caregiver well-being, family engagement, and careful use of health data and AI.
Training and credentials
The work starts from lived experience. It has grown into helping researchers, clinicians and organizations see what practical partnership looks like for families.
That partnership has to work for the families in the room.
I started in food, nutrition and wellness. That care for real life still shapes how I show up with families and the teams who invite them in.
Parenting through rare disease taught me what it takes to belong, to understand the information, and to be heard.
I care about caregiver well-being, the ethical use of health data and AI, and rooms where patient, family, clinical and research communities can listen to each other.
Three places lived experience and training show up in my work.
Helping teams invite families in with care, from the first ask through how results come back.
Practical, lived-experience-informed support for the people behind the care, including workshops like Finding Breathing Room.
Bringing lived experience into research, education and advocacy in ways that are thoughtful, practical and sustainable.
Caregiver and patient-family partner bringing lived experience to board, advisory, research and healthcare conversations.
Co-researcher on a caregiver-led study exploring how caregivers of children diagnosed with a rare disease find strength, support and moments of well-being. Best Poster, Children's Healthcare Canada Conference, 2026.
Contributed patient and family perspectives to a national drug reimbursement evaluation panel with Canada's Drug Agency.
Parent-partner involvement in Canadian rare disease research, engagement and community initiatives.
Training in meaningful family engagement in research, followed by advanced leadership development for family partners.
Healthcare, research and family audiences.
Board, advisory, workshops and research partnership when values and timing line up.
I'm especially interested in board and advisory roles with organizations whose work aligns with these values.
Partnering with healthcare organizations, foundations and research teams on how caregivers and family partners are welcomed, supported and valued.
Co-design, grant and protocol review, ethics input and plain-language summaries.
Lived-experience-informed sessions for caregivers, including Finding Breathing Room for realistic caregiver well-being.
Panels, workshops and facilitated conversations on caregiver well-being, family partnership and rooms where clinicians and families can hear each other.
Findings and policy turned into something families and community groups can use.
Reflection on data, ethics, AI and patient/caregiver perspectives.
Co-presented with Dr. Deborah Marshall on PaCER and lived experience in research.
Working in child health, rare disease, family engagement or caregiver well-being? You can reach me by email or LinkedIn.
